“Being free of symptoms means being able to enjoy life without always having to think about my skin. I think that anyone who has not been in that situation cannot imagine what it is like to not think about your skin and about your skin condition.” – Karin Hafner
Her story: Karin has been living with a serious skin condition her
entire life. On a trip a few years ago to the Dead Sea, she found she
was able to share her experiences with others who also lived with
serious skin conditions—and it opened up her whole world. Karin
realized the underlying feelings and fears of people with serious skin
conditions were shared by others, and that speaking with someone who
has had similar experiences can be therapeutic. That realization
motivated her to start Hautinfo.at as a reliable resource to connect
and provide information for people living with skin conditions.
Her Speak Clearly goals: To educate others with serious skin conditions through her own experience, and to connect people to credible information about their condition
“We wanted to create a space for psoriasis patients to share their stories and these stories can possibly empower others to speak up and advocate for the best care possible for their psoriasis.” – Sascha
His story: After starting his blog for psoriasis patients to share their journey with the disease, Sascha realized the importance of having a safe space where people can talk about their experiences. Through his website and podcast, he’s learned so much about the different approaches to lifestyle, attitude and disease management people living with psoriasis have. His podcast has allowed others to share this knowledge with the psoriasis community, and it made him recognize that sharing your story can not only help you, but others as well.
His Speak Clearly goals: To inspire others to aim higher and take control of their psoriasis by sharing his own experience
“Whether that’s online, through social media, through your doctor. – find something that you are comfortable with and ask the questions that you need to ask in order to get the support you need and deserve.” – Lianne
Her story: After sharing her psoriasis story on social media, Lianne learned firsthand how powerful the online community can be as a support system. That marked the day she went from letting her psoriasis hold her back to becoming a powerful voice for the community—a community that helped her build real friendships with people she was able to lean on in hard times.
Her Speak Clearly goals: To empower others to be their own advocate, and not let their psoriasis define them
“After suffering from psoriasis for the majority of my life, I finally came to a place where I felt free from my disease. I want to help others get to a place where they can achieve that psoriasis-free feeling.” – Bernd
His story: Living with psoriasis for over 30 years, Bernd understands the struggles that come with living with a chronic skin disease. He knows that feeling free from your psoriasis can take hard work. That’s why he’s made it a priority to reduce the stigma associated with psoriasis and help others feel confident to demand the best care possible from their doctor—so they too can feel free in their own skin.
His Speak Clearly goals: To improve education around psoriasis and reduce the stigma around living with the condition
Stay tuned for content from our Psoriasis Storytellers soon! In the meantime, hear more of their stories and stories from others on story page.
You deserve to feel confident in your skin, but how do you have a clear conversation about your psoriasis goals with your doctor? Sometimes speaking up can be the hardest part.
Be clear about your goals. The power to speak up, feel confident and demand the best care is within you. Sharing your story could be your next step to feeling free from psoriasis—and possibly inspire others to do the same.